It had to happen. After weeks of following the discussion “meaningful use” it became obvious that the patient should be part of the equation. And it did happen. Yesterday “A Declaration of Health Data Rights” was published. And the whole US health IT blog world is buzzing about ownership.
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ICMCC Blog
Observations 23 June 2009: Declaration
Previous Entries
The Beauty of ICMCC News Page
Marcel Salathe is the author of an applet that made this rendering. You can see it in action here.
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Interoperability Summit: Establishing the Infrastructure for Health Assurance and Disease Prevention, Washington 1-2 June 2009
Establishing infrastructure for health assurance and disease prevention through healthcare transformation was the theme of this invitation-only event. The meeting was sponsored by the American Institute of Medical and Biological Engineering (AIMBE) and co-sponsored by all major technical professional societies engaged in health information technology issues, from ethics and standards… to patient care and eHealth.
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Observations 25 May 2009 - about numbers
It was my intention to write an observation today on something remarkable which I already mentioned a couple of months ago:
“do these studies really have any value at all, looking at the numbers involved?“.
The reason why I come back to this is because of a publication in Health Data Management, published 1 June, by Howard Anderson, “Survey Shows Americans Want EHRS“. This survey was mentioned earlier, during the week of the Health2.0 conference. It amazed me then, but now even more, when a journal like HDM refers to it. Why I mention it? It was a “telephone survey of 1,238 randomly selected respondents“. Have we gone so far as to call a survey of 1,238 persons on a total population of 306m representative in any way? And draw conclusions from it, just because it seems to favour those who want to get the EHR move going, as respectable as their goal may be?
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Observations 13 May 2009: The Dutch are amazing!!!
I am at the WHCC Europe 2009 in Brussels, my first trip since I was really hit by the consequences of my chemotherapy. And it is not easy. Even more, because there is no internet in the rooms, due to a technical problem. And for a handicapped man it would have been much easier to stay at close range to be able to work.
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Observations 8 May 2009
It has been a relatively quiet week, news-wise talking. Which was to be expected, after HIMSS, WHCC and Health2.0. Most of the news was about meaningful use. It gave me the chance to do some other things. I’m trying to improve the lay-out of the ICMCC website, which I hopefully will finish by June 1, as well as a new service to enhance the site as a major source of information on medical and care compunetics.
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Report: Australian National Telemedicine Summit
The Australian National Telemedicine Summit was held from 16-17th March 2009 in Sydney. It was organised by the IIR conferences under the theme “Creating a Viable Alternative to Face-to-Face Medical Care“. About fifty attendees including decision makers, doctors, nurses and technology experts came from around the country. The meeting was chaired by the ICMCC Vice-President Prof. K. Yogesan, President of the Australasian Telehealth Society. The keynote lectures were given by Peter Fleming, CEO of the National E-Health Transition Authority and Deena Shiff, Group Managing Director, Telstra Business. Mr. Fleming discussed about e-Health initiatives and Ms Shiff talked about “getting ready for the e-Health revolution“.
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Observations from a distance - Health 2.0 Conference Part 2
John Moore in his post Health 2.0: A lot of Hot Air in This Balloon pointed out that
“Most of the companies on display at Health 2.0 will not be with us in 3 years time. There are simply too many companies with too little differentiation, chasing too few dollars with faulty business plans. The market is not yet at a state of maturity that will lead to broad adoption, consumers are simply not that engaged, yet.”
Observations from a distance - Health 2.0 Conference Part 1 (updated 27 April)
Let me start saying that I have not attended the Health 2.0 Conference in Boston.
This post is an overview of what has been posted about that conference. My reactions based on that output will come later; for now just a small starting remark:
A post at The Health Care Blog on April 23, a combined effort of 4 authors, about The Health 2.0 Accelerator (H2A) immediately made me put a remark of worry on Twitter. Why?:
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Observations WHCC09
The 6th Annual World Health Care Congress is the most prestigious meeting of chief and senior executives from all sectors of health care. The 2009 conference will convene over 2,000 CEOs, senior executives and government officials from the nation’s largest employers, hospitals, health systems, health plans, pharmaceutical and biotech companies, and leading government agencies.
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Observations - Standards world is moving
On April 6, Chip Means from Healthcare IT News Europe announced that International healthcare IT standards groups sign agreement, which was done on April 5 at HIMSS.
IHTSDO and HL7 cooperating is a very important move into the good direction, in my opinion. Interoperability is one of the leading issues in how we can and must manage the data flow that will become such an important part of the transformation of healthcare.
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Observations - Meaningful Use? (updated 14 April)
Last night I wrote the below reaction to the overwhelming number of reactions to Dave “the e-patients” experience with Google Health and the interaction with his hospital data.
This morning I was shocked to see, that iHealthBeat had the audacity to announce the story as:
Physicians Raise Concerns About Inaccurate Claims Data in PHRs.
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Observations HIMSS09 (updated 15 April)
HIMSS09, 900 vendors, over 25,000 visitors.
I updated this on 15 April, with a couple more wrap ups and a podcast overview and of course videos from Matthew Holt, but also from EHRTV.
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Observations 4 April 2009 - Quotes
Just a couple of quotes from the past week:
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Information technology and behavioral medicine: impact on autism treatment & research
It is World Autism Awareness Day today. And I use the title of a paper during our first ICMCC Event for this blog entry as a tribute to all those friends who have children with autism, and to my late mentor and friend Swamy Laxminarayan, for whom autism was one of his favorite subjects.
Have a look at yesterday’s story at CNN:
Observations 1 April 2009 - Shocking revelations
As a European I have no access to Google Health or HealthVault. So unfortunately I am not in a position to look at these products myself and judge their quality, usability and all the other issues that would be important to me as a patient.
However, one of the more eloquent and well-known patients in the US did try it out. Know as “e-patient Dave”, Dave deBronkart, became an e-patient when beating cancer - stage IV, grade 4 renal cell carcinoma in 2007. Since then he has been very vocal about aspects of patient empowerment and commented extensively about Tom Ferguson’s e-patients - How They Can Help Us Heal Healthcare white paper.
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Observations 30 March 2009 - The Other NEJM Article
The dust has settled. The last few days of last week were completely dominated in the US medical IT news by these to articles in the NEJM:
Ashish K. Jha et al., “Use of Electronic Health Records in U.S. Hospitals” [4]
and
David Blumenthal, “Stimulating the Adoption of Health Information Technology” [5]
I would like to focus on the article that got relatively little attention:
“Your Doctor’s Office or the Internet? Two Paths to Personal Health Records,” by Paul C. Tang and Thomas H. Lee. [1]
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Guest: Bettine Pluut: “Health 2.0 doctor@work: Amir Hannan”
Bettine Pluut is consultant on care innovation at Zenc in The Netherlands, with an emphasis on the effects of EHRs.
Amir Hannan is a General Practitioner working at Haughton Thornley Medical Centres in the UK. He works with an Electronic Health Record (EHR) to which both doctor and patient have access. Through the web-based EHR named Emis Access patients and their families can gain access to personal health information that is available at the clinic. In addition, patients can book appointments with their GP online and order repeat prescriptions. After interviewing Amir Hannan it is clear to me that he is a vivid example of a “health 2.0 doctor”. So what are Amir Hannan’s ideas about the changing doctor-patient relationship? And how can ‘health 2.0’ be put to work?
Observations 25 March 2009
“To PHR or Not to PHR. That is Today’s Question” by Samantha Werner and Eric Fishman.
A challenging title.
“Electronic Health Record, can help physicians keep track of the examinations they perform, the prescriptions they provide, and the course of recommended treatment for an ailment.”
“Just like an EHR, Personal Health Records, also known as PHRs, can be extremely beneficial to your health and to the health of those around you.”
Observations 24 March 2009
 |
Remember that beautiful map of science picture I posted recently? This image of the brain, a still from this spectacular video, shows that nature still beats all! |
Observations 23 June 2009: Declaration
23 June 2009
“It had to happen. After weeks of following the discussion “meaningful use” it became obvious that the patient should be part of the equation. And it did happen.
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ICMCC Toolbar
22 June 2009
To make our news supply even more easily accessible, we offer now for free the ICMCC Toolbar. Direct links to all parts of the ICMCC website, RSS feeds and main news topics, directly from the ICMCC Toolbar. Available for Firefox and IE.
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Books
Medical and Care Compunetics 5
Lodewijk Bos, Bernd Blobel (eds)
Series on Health Information Technologies 147, IOSPress, 2008
Publications
Lodewijk Bos, Andy Marsh, Denis Carroll, Sanjeev Gupta, Mike Rees,
Patient 2.0 Empowerment
in: Proceedings of the 2008 International Conference on Semantic Web & Web Services SWWS08, Hamid R. Arabnia, Andy Marsh (eds), pp.164-167, 2008
Lodewijk Bos, Denis Carroll, Andy Marsh,
The Impatient Patient,
in: Medical and Care Compunetics 5, L. Bos et al (eds), IOS Press 2008 (PubMed)
Lodewijk Bos,
Medical and Care Compunetics - the Future of Patient-Related Care,
in: Medical and Care Compunetics 4, L. Bos and B. Blobel (eds.), IOS Press, 2007 (PubMed)
Brian Fisher, Richard Fitton, Lodewijk Bos,
WHO recommendation on record access (draft),
in: Medical and Care Compunetics 4, L. Bos and B. Blobel (eds.), IOS Press, 2007 (PubMed)
Thierry Chaussalet and Lodewijk Bos,
The ICMCC second conference on "Medical and Care Compunetics"
, in: IJMI, Volume 75, Issue 9, September 2006, Pages vii-viii (PubMed)
Lodewijk Bos, Swamy Laxminarayan and Andy Marsh,
The Information Paradigm,
in: Medical and Care Compunetics 2, L. Bos et al (eds.), IOS Press, 2005 (PubMed)
A. Marsh, S. Laxminarayan and L. Bos,
Healthcare Compunetics,
in: Medical and Care Compunetics 1, L. Bos et al (eds.), IOS Press, 2004 (PubMed)
Blog
Observations 23 June 2009: Declaration
It had to happen. After weeks of following the discussion “meaningful use” it became obvious that the patient should be part of the equation. And it did happen. Yesterday “A Declaration of Health Data Rights” was published. And the whole US health IT blog world is buzzing about ownership.
[ More ]
Marcel Salathe is the author of an applet that made this rendering. You can see it in action here.
[ More ]
Establishing infrastructure for health assurance and disease prevention through healthcare transformation was the theme of this invitation-only event. The meeting was sponsored by the American Institute of Medical and Biological Engineering (AIMBE) and co-sponsored by all major technical professional societies engaged in health information technology issues, from ethics and standards… to patient care and eHealth.
[ More ]
